CAC NEWS
VENTURA COUNTY SELPA, MAY/JUNE 2023
INFORMATION FOR FAMILIES AND CAREGIVERS OF STUDENTS WITH DISABILITIES
A collaborative partnership of
school districts, staff, students, parents/families, and community agencies
Supporting Equitable Learning, Programs and Access
for ALL students.
WHAT IS THE CAC?
Who is in the CAC?
- Parents/guardians of individuals with disabilities (the majority)
- Representatives of agencies that serve people with disabilities
- School staff
How can I participate?
Members of the public are always welcome to attend CAC meetings and give public comments. CAC Meetings are governed by the Brown Act and only items on the agenda will be discussed. Staff may follow-up as needed. If you prefer to speak with a CAC member privately or by phone, call the SELPA office at (805) 437-1560 for contact information, including the name of your school district representative.
CAC ANNUAL PRIORITIES
Promote connection, collaboration and communication between districts and parents
Creating Community:
- Outreach to families and connecting with the broader community
Building Capacity:
- Fostering connections between districts, parents, and community organizations
Inclusion and Beyond:
- The Why, What & How of Inclusive Practices
Mental and Social Emotional Health:
- Provide parent education and resources available to help families understand mental health with an emphasis on destigmatization and fostering their child’s social emotional development.
Legislative Action:
- Participate in Legislative Action Day, connect with local and federal lawmakers
Transition Across the Grade Spans:
- Virtual and In-Person Transition Fairs
- Transition IEP training
CAC and Leadership Development:
- Receive leadership development support and training
- Develop updated VC SELPA CAC Best Practices
- Update Parent Guide and CAC Handbook
Email Sign-Up!
The Ventura County SELPA is dedicated to providing information and support to families and caregivers of students with disabilities so that they can be informed partners in the educational process of their children. There are numerous activities and resources that are provided to fulfill that mission.
Sign up to receive announcements of informational items for families directly to your email.
SELPA COMMENDATIONS
To nominate someone (Teacher, Student, Parent, Specialist) for "going above and beyond" in serving special education students and/or families, go to the SELPA website, click on "Information for Families" and look under CAC for an application.
You Are Invited To The Next CAC Meeting:
New School Year Calendar will be posted for SY 2023-2024
4 - 6 PM
Members of the public are always welcome to attend CAC meetings and give pubic comments.
To receive Meeting Notices Click Here.
The CAC Is Here to Support You!
2022-2023 CAC BOARD
Carole Shelton, Chair
Lee Ann Holland, Vice-Chair
Myra Medina, Membership Secretary
Amanda Alfred, Treasurer
Vacant, Parliamentarian
Flavia Seawright, Public Information Officer
Amber Christensen, Recording Secretary
HIGHLIGHTS FOR THE MONTH OF MAY
Mental Health Is Your Health!
Often, we think of health in physical terms, but mental wellness is just as important. Mental health plays a big role in our day-to-day mood and quality of life, which becomes very obvious when we're feeling sad, stressed, or anxious. But it also is apparent when we're feeling happy, calm, and confident.
So, this May, let's celebrate Mental Health Awareness Month by paying closer attention to our mental health, and doing more of the things that keep us mentally well!
Here are some strategies to help live your life fully:
Talk
It’s good to talk about mental health struggles; we all have them. It could mean talking with a friend or family member, or with your doctor or a counselor. It’s OK to not always feel OK. But if it becomes too much it’s time to seek help.
Sleep
Healthy sleep is critical for your body and mind. If you have things on your mind that are keeping you awake, try writing them down before bed. Put down your phone and stop looking at screens an hour before bedtime. Try reading a book in bed until you feel sleepy.
Eat
A healthy diet is good for your body and mind. Try to eat a well-balanced diet. Introduce more fruit and vegetables (especially vegetables). Try to avoid pre-packaged and processed foods. A glass of water every couple of hours works wonders!
Practice mindfulness
A short period of calm can change your whole day. It might come from mindfulness, meditation or prayer, but finding time to step away from the business of daily life can strengthen your brain to cope better with stress.
Exercise
It can be a challenge to fit a regular exercise plan into your life. But it is so worth it! Regular exercise will help your body and your mind. You’ll move better and you’ll feel better.
Relationships
Stay in touch with friends and family– in person or virtually. Find time to share feelings and make time do things together. Remember the good times and experiences. Make some new memories. Enjoy the world with others!
Intellectual and Developmental Disability (I/DD) and Mental Illness
- Disability, mental health, and education professionals lack key knowledge about people with I/DD and mental health challenges.
- There is often a lack of appropriate, available resources or services for families.
- People, families, and professionals struggle to communicate effectively with one another
- People with dual diagnosis, parents, and siblings may often feel lonely or isolated as a result of lack of understanding, discrimination, or stigma.
- Professionals need training on how to more effectively support people and families.
- People with disabilities and families need training and education.
- Peers, professionals, and family members working together as a team is important for helping families feel supported and successful.
- People with I/DD and mental health challenges need more opportunities for emotional support, inclusion, and building relationships
Mental Health Awareness
This year, NAMI is celebrating Mental Health Awareness Month with the More Than Enough campaign!
It’s an opportunity for all of us to come together and remember the inherent value we each hold — no matter our diagnosis, appearance, socioeconomic status, background or ability. We want every person out there to know that if all you did was wake up today, that’s more than enough. No matter what, you are inherently worthy of more than enough life, love and healing. Showing up, just as you are, for yourself and the people around you is more than enough.
Join The #MoreThanEnough Campaign
Throughout the month, share on social media why you are more than enough by tagging (@NAMICommunicate) and using the hashtag #MoreThanEnough.
Building A Strong Foundation
Each May, Better Hearing & Speech Month (BHSM) provides an opportunity to raise awareness about communication disorders and the role of ASHA members in providing life-altering treatment.
For 2023, our theme is “Building a Strong Foundation”
Throughout the month, you’ll see public outreach that includes sharing member stories and survey results, and mass media campaigns. We will also offer an array of simple resources—a social media contest, website graphics, press releases, posters, and more—to help ASHA members spread the word about their work.
American Speech-Language-Hearing Association (ASHA) outreach
This year marks the 10th anniversary of the “Identify the Signs” campaign, so much of ASHA’s BHSM outreach will focus on early identification and intervention. New polling results will be released at the beginning of May from members who work with 0–5 populations.
SLP Robert Augustine, ASHA president, and audiologist Tena McNamara, 2024 president-elect, will lead a national media tour on the topic.
As part of the “Real Stories” public service announcement campaign, which launched during BHSM last year, ASHA will also release a new series of video ads about members’ work. These PSAs feature stories of people of all ages with communication disorders and show how the work of certified audiologists and SLPs makes differences in their lives.
Keep an eye on www.asha.org/bhsm for the latest updates.
During Apraxia Awareness Month, Apraxia Kids hopes to make an impact and Be the Voice for children with apraxia of speech!
WHAT IS CHILDHOOD APRAXIA OF SPEECH (CAS)?
Childhood apraxia of speech (CAS) is a motor speech disorder that makes it hard for children to speak. Children with the diagnosis of apraxia of speech generally have a good understanding of language and know what they want to say. However, they have difficulty learning or carrying out the complex movements that underlie speech.
WHAT IS THE DIFFERENCE BETWEEN CAS AND A SPEECH DELAY?
A true developmental delay of speech is when a child is following a “typical” path of speech development, although at a rate slower than normal. A child with apraxia of speech is on a “different” path, and has difficulty planning the movement sequences required for speech. This may result in inconsistent errors and difficultly with smooth transitions from sound to sound or syllable to syllable to form words, phrases, and sentences.
Ventura County SELPA RESOURCES
HUNTER SYNDROME (MPS II)
Hunter Syndrome (MPS II)
Hunter Syndrome (MPS II) is a mucopolysaccharide disease known as Hunter syndrome. MPS II has a wide range of symptoms that vary in severity and can be managed and treated with enzyme replacement therapies. There is no cure for MPS II.
MPS II patients are missing the enzyme iduronate sulfatase, which is essential to breaking down the mucopolysaccharides dermatan and heparan sulphate. These materials remain stored in the body’s cells, causing progressive damage. Babies may show little sign of the disease, but as cells sustain damage, symptoms start to appear.
PRADER-WILLLI SYNDROME
Prader-Willi Syndrome
The symptoms of PWS change over time in individuals with PWS, and a detailed understanding of the nutritional stages of PWS has been published.
In addition to obesity, a variety of other symptoms can be associated with Prader-Willi syndrome. Individuals usually exhibit cognitive challenges, with measured IQs ranging from low normal to moderate intellectual disability. Those with normal IQs usually exhibit learning disabilities. Other issues may include growth hormone deficiency/short stature, small hands and feet, scoliosis, sleep disturbances with excessive daytime sleepiness, high pain threshold, speech apraxia/dyspraxia, and infertility. Behavioral difficulties may include obsessive-compulsive symptoms, skin picking, and difficulty controlling emotions. Adults with PWS are at increased risk for mental illness. PWS is a spectrum disorder and symptoms vary in severity and occurrence among individuals.
WILLIAMS SYNDROME (WS)
Williams Syndrome (WS)
Williams Syndrome (WS) is a rare genetic condition that is present at birth and can affect anyone. WS affects 1 in 10,000 people worldwide – an estimated 20,000 to 30,000 people in the United States. It is known to occur equally in both males and females and in every culture.
It is characterized by medical problems, including cardiovascular disease, developmental delays, and learning challenges. These often occur side by side with striking verbal abilities, highly social personalities, and an affinity for music. WS occurs equally in males and females and in all cultures worldwide.
There are many features common to those with Williams syndrome.
HIGHLIGHTS FOR THE MONTH OF JUNE
Summer Recreation & Opportunities
Angel City Games: June 29 - July 2, 2023
The Angel City Games is a family friendly event with wide array of activities and special events throughout the week for all to enjoy. The goal is to celebrate the talents and strengths of adaptive athletes, and create a community of support and understanding around sports.
SAVE THE DATE:
Jun 29 – Jul 2, 2023
University of Southern California (USC)
Sports Schedule and Registration Links. Click Here!
Registration is required. All Athletes must register. An Angel City Sports Athlete is anyone that will be actively participating in sport. Athletes may be a child or an adult who has a disability or be non-disabled family or friends. Registered Athletes will be the only members who are allowed to participate in sport in the event.
Junior Wheelchair Sports Camp: July 17-21, 2023
Junior Wheelchair Sports Camp provides sports and recreation skills development for children, youth, and young adults between the ages of 6 to 21 years old who can use a wheelchair to participate in activities.
The 2023 Junior Wheelchair Sports Camp will be held July 17-21. Visit the Volunteer Services page to apply for camp volunteer opportunities.
Camp provides recreational and competitive opportunities for youth athletes ages 6-21* with physical disabilities who use a wheelchair, or could use a wheelchair, to participate in sports and recreation. *New young adult group added for athletes up to 21 years of age.
Sports and recreation activities include basketball, rugby, tennis, swimming, hand cycling, climbing wall and more. The five day camp will be held July 17-21, 2023 at the Recreation Center on UCSB campus.
Registration for this year's event is now open. Please click here for registration.
When School's out, how can I keep my child busy?
Local Recreation and Park Districts/Programs
Local Libraries
Covers Fillmore, Oxnard, Ojai, and Ventura
Local Resources
Opportunities for Students with disabilities
Autism Safari Nights
Drop the kids off to play while you connect with other parents of kids with Autism Spectrum Disorder. Children (up to 18 years old) will enjoy a movie, reading corner, bounce house, and sensory activities while parents eat, drink, and mingle.
Pre-registration is required for this event as space is limited. Register online here.
We strive to host inclusive, accessible events that enable all individuals to engage and participate fully. To request accommodations or for inquiries about accessibility, please email welcome@sbzoo.org.
Local Accessible Parks
Arneill Ranch Park
The Pleasant Valley Park and District located in Camarillo, invited the community to celebrate the grand re-opening of the Arneill Ranch Park on July 9, 2022. Arneill Ranch Park was developed in 1980 as a five-acre park. It is nestled in the Arneill Ranch community of Camarillo. It features a walking track, fitness stations, restrooms a play structure, and picnic tables. The park sits between Arneill Drive and Sweetwater Avenue in Camarillo.
This new public amenity is Camarillo's first fully inclusive play area for youth of all abilities. It has a new playground equipment designed to accommodate special needs children. Funding for the ADA exercise equipment was donated by Camarillo Amber's Light Lions Club.
1301 Sweetwater Ave., Camarillo, CA, 93010
Arroyo Verde Accessible Park
The City of Ventura opened a new public amenity as Ventura’s first fully inclusive play area for youth of all abilities.
The 10,750 square foot play area features a colorful play surface, new landscaping, gathering areas, swings, hammocks, balance beams, a sensory garden, a motion-inclusive carousel, embankment climbers, and music play areas.
It also features a sensory wall with recognition tiles dedicated to those who donated to the project.
5000 Foothill Rd, Ventura, CA 93003
Old Meadows Center Dream Catcher Playground
Our park includes a one-of-a-kind "SensAbility Playground", an interactive play area stimulating senses and abilities.
The playground features many unique play pieces including "Playville" miniature village, elevated sand table, "Sand Works", one backhoe digger, Tenor Marimba (a xylophone-like musical piece), Talking Bob, talking horns, a sign language panel, and several sensory panels.
The play area is surfaced with sand and rubber, providing accessibility to approximately 60% of the playground.
1600 Marview Dr, Thousand Oaks, CA 91362
What is Alternative Dispute Resolution (ADR)?
COMMUNITY RESOURCES
Rainbow Connection Family Resource Center
Rainbow's mission is to serve children and adults with developmental disabilities and their community. Rainbow believes that every person should be valued, respected and given the opportunity to reach their fullest potential.
For more information and to register or for ongoing Support Groups, Training & Activities go to:
www.rainbowconnectionfrc.weebly.com
Call: 805-485-9643 or 800-332-3679
Email: rainbow@tri-counties.org
Tri-Counties Regional Center
Tri-Counties Regional Center is one of twenty-one non-profit regional centers in California providing lifelong services and supports for people with developmental disabilities residing in San Luis Obispo, Santa Barbara and Ventura Counties.
TCRC provides person and family-centered supports for individuals with developmental disabilities to maximize opportunities and choices for living, working, learning, and recreating in the community.
Tri-Counties Regional Center Offices
All TCRC offices have re-opened to the public.
On-Call Managers
Simi Valley Office: (805) 456-8020 sv@tri-counties.org
Oxnard Office: (805) 456-8021 ox@tri-counties.org
Fillmore Office: (805) 292-1101
Early Start Program – Newborn to Age 3, No Referral Needed
Are you concerned about your child's development? Does any aspect of their speech, physical abilities, behavior, or any other area seem delayed? We want you to know that the Tri-Counties Regional Center Early Start program is here to identify and treat developmental delays in children 0-3 years of age. These services are free; there is no cost to you. Our clinical and intake teams are fully operational. Please share the word that anyone may refer to our Early Start program. If you are concerned about your child’s development, visit our Connect with an Intake Coordinator web page. Learn more about our Early Start program here.
State Council on Developmental Disabilities (SCDD)
Welcome to SCDD!
The State Council on Developmental Disabilities (SCDD)is established by state and federal law as an independent state agency to ensure that people with developmental disabilities and their families receive the services and supports they need.
Consumers know best what supports and services they need to live independently and to actively participate in their communities. Through advocacy, capacity building and systemic change, SCDD works to achieve a consumer and family-based system of individualized services, supports, and other assistance.
Vision:
Californians with developmental disabilities are guaranteed the same full and equal opportunities for life, liberty, and the pursuit of happiness as all Americans.
Mission:
The Council advocates, promotes and implements policies and practices that achieve self-determination, independence, productivity and inclusion in all aspects of community life for Californians with developmental disabilities and their families
SELPA LEADERSHIP AND STAFF
The Ventura County SELPA office is responsible for the implementation of the Ventura County Special Education Local Plan, and for ensuring a free appropriate public education to all students with identified disabilities according to the Individuals with Disabilities Education Act.
Emily Mostovoy-Luna - Associate Superintendent
Sarah Fontenot- Administrative Assistant III
Local Plan Implementation
Interagency Coordination, Policies & Procedures
SELPA Office Operations
Related Staff: Adapted PE Teachers, Assistive Technology Assessment Center,
Orientation & Mobility Specialists, Residential Placement Consultants
Regina Reed - Director of Personnel Development Anabel Lopez-Penny - Administrative Assistant II Program & Personnel Development
ERSES Program & COEDS
Behavior
Early Start
Related Services Staff: Social/Emotional Services Specialists, DHH Teachers
Joanna V. Della Gatta - Director of Technical Support and Transition Mariella Cazares-Flores - Administrative Assistant II
SIRAS Support, Forms & Instructions
Private Schools
Pattern of Strengths & Weaknesses Model
WorkAbility Program
Transition
Related Services Staff: Occupational Therapists, Physical Therapists, WorkAbility Specialists
Kim DeAnda - Program Specialist
Jeanine Murphy-Assistant Director, Family & School Collaboration
Alternative Dispute Resolution (ADR) Services
Email: vcselpa@vcoe.org
Website: www.vcselpa.org
Location: 5100 Adolfo Road, Camarillo, CA, USA
Phone: 805-437-1560
Facebook: https://facebook.com/VenturaCOE
Twitter: @VenturaCOE