Family Bi-Weekly Update
Family Bi-Weekly Newsletter
February 9, 2024
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Social, Recreational & Learning Opportunities
Family Resource Center on Disabilities Webinars
Sensory Sensitive Sundays at Chuck E. Cheese
Participating Locations
41 W. RAND RD, ARLINGTON HEIGHTS, IL 60004
4725 NORTHWEST HWY, CRYSTAL LAKE, IL 60014
1512 NATIONS DRIVE, GURNEE, IL 60031
7142 CARPENTER FRWY, SKOKIE, IL 60077
Please make sure to call ahead to ensure the location is hosting at this time.
AMC Dine In at Northbrook Court
Our Sensory Friendly Film program is available on the second and fourth Saturday (family-friendly) and Wednesday evenings (mature audiences) of every month.
AMC is proud to partner with the Autism Society to offer unique movie showings where we turn the lights up, and turn the sound down, so you can get up, dance, walk, shout or sing!
Please check your local theatre listings for specific showtimes, and don't forget to share your family fun with #AMCSensoryFriendly.
We Rock the Spectrum Kids Gym and Activity Center
Messy Day at the J: Sensory Friendly Edition!
One of our favorite programs is back at Bernard Weinger JCC in Northbrook! Get ready to get messy with shaving cream, paint, kinetic sand, Play-Doh, bubbles, face paint and so much more. This program is geared towards children 3-10 years old and is sensory-friendly. A quiet zone with fidgets and noise cancelling headphones will be available for anyone who needs to take a step away from the mess.
FREE; registration requested.
DATE
February 11, 2024
TIME
1:00pm - 3:00pm
LOCATION
Bernard Weinger JCC
300 Revere Drive, Northbrook, Illinois, 60062, United States
CONTACT
Rena Rosen
Virtual Adaptive Yoga
Jewish Disability Awareness, Acceptance & Inclusion Month continues with a virtual adaptive yoga class. Join instructor Melanie Waldman to find your center from the comfort of your own home! Free; registration required.
*Live captioning will be available for this program.
Melanie has been practicing yoga for the past 15+ years, but after her arm was amputated & she was diagnosed with musculoskeletal disease (Ehlers Danlos Syndrome) and had to make a serious shift to her “standard” power yoga practice. Her goal is to make classes as equitable, easeful, and accessible.
DATE
February 11, 2024
TIME
10:00am - 11:00am
REGISTER
FREE
Strategy for Access and Fun4theDisable are thrilled to invite you to a FREE screening party launching our groundbreaking docuseries, #AccessibleChicago.
#AccessibleChicago showcases 16 iconic Chicago attractions as experienced by persons with disabilities. From museums are parks to cultural landmarks and natural wonders, #AccessibleChicago takes viewers on an inclusive journey through destinations that accessible and enjoyable for all.
Please join us for a FREE screening.
Tuesday, February 13, 2024
5:30 - 7:30 pm
Protected Tomorrows’ 2024 Parent University
2024 Parent University™ Class 2: BACK TO BASICS AND WHAT’S NEW
Date/Time
Date(s) - February 15, 2024
12:00 pm - 1:00 pm
Sponsored by: Protected Tomorrows’ 2024 Parent University™
Speaker: Mary Anne Ehlert, President & Founder, Protected Tomorrows, Inc.
Description:
Protected Tomorrows’ 2024 Parent University™ brings you our second in a series of educational webinars…
“BACK TO BASICS AND WHAT’S NEW”
This is for our new participants as well as those who have been with us before. We will review the basics and hear about what’s new. What do you have to pay attention to and how will it change your plan? Government Benefits, Special Needs Trusts, ABLE accounts, Secure Act 2.0, Tax Changes, and more.
Mary Anne Ehlert will host this online Zoom class on:
February 15th, 2024
12:00pm – 1:00 pm CST
Event is FREE but ADVANCED REGISTRATION is required by Wednesday, February 14th.
Speakers: Teresa Parks, Director of Programs, Illinois Guardianship & Advocacy Commission; Diane Compton, Parent Advocate; Erin Compton, Self-Advocate
Supported Decision-Making (SDM) is an alternative to guardianship for adults with intellectual or developmental disabilities who need some assistance in making decisions. It allows the individual to make choices about their own life with help from a chosen team of friends, family members, or professionals who serve as supporters. Dignity of Risk is a concept that dovetails perfectly with SDM as it encourages caregivers to respect the right of an individual to take reasonable risks, and perhaps make mistakes, on their path to self-determination and self-esteem.
Teresa will provide an overview of what Supported Decision-Making looks like in Illinois while Diane and Erin will share the perspective of a parent and self-advocate.
A Zoom link for the presentation will be sent out a day before the event using the email address that you supply. If you do not receive the link, please email us at ConnectToCommunityInc@gmail.com.
Informational Tours
EDUCATIONAL OUTREACH SPRING 2024
Wednesday, March 6, 2024
3:00 p.m. to 4:00 p.m.
Gerry's Café
1802 N. Arlington Heights Road
Arlington Heights, IL
Founded by Natalie Griffin and Amy Philpott, Gerry’s Café was created to provide employment opportunities for people with disabilities. After years of planning, networking, fundraising, and just plain hard work, Gerry’s Café opened in August, 2023, and its 40+ employees with intellectual and developmental disabilities have been serving up a cup of joy ever since.
Plan to arrive at 2:45 so you have time to grab a beverage and/or baked good to support the café (Please note: Gerry’s is a cashless café). Natalie will then sit down with us to share the Gerry’s story and to answer questions, and we will end with a walking tour of the café before their 4:00 p.m. closing time.
Event is FREE but ADVANCED REGISTRATION is required by
Monday, March 4th.
Space may be limited.
West Northfield School District Parent Education Series
Join us for the upcoming Parent University Series featuring presentations designed to help our families thrive. Learn more about the education series and find other helpful resources at www.district31.net/parenteducation.
Understanding Assessment in the Framework of Talent Development
Tuesday, February 20, 2024 at 6 p.m. at
Winkelman. Presented by Melissa Hinshaw
Location:
Winkelman Elementary School
1919 Landwehr Road, Glenview IL 60026
Center for Independent Futures
Oak Wealth and New Trier High School Special Needs Planning Presentations
A series of 3 presentation will be held at:
New Trier High School
385 Winnetka Ave.
Winnetka, IL
Room E231/233 from 6:00-7:00 PM
Enter through N19
Presentation 1: Wednesday February 21, 2024
Government Benefits - SSI/Medicaid/SNAP
Please join us for an informational hour with Founder and President of Oak Wealth Advisors, Mike Walther. Parents and guardians will receive an introduction to governmental benefits. Who is eligible for benefits? How do you access them? Accessing governmental benefits for food, shelter, health care is financially valuable throughout your loved one’s lifetime. We will discuss Medicaid, Supplemental Security Income (SSI), the Supplemental Nutrition Assistance Program (SNAP) which are the primary means-tested benefits the government provides. Handouts and a takeaway checklist will be provided to help you with the next steps. This presentation is beneficial for families who are interested in understanding their benefit options and is essential for families with loved ones who are around the magic age of 18.
Presentation 2: Wednesday April 3, 2024
Optimizing the Use of ABLE Accounts and Special Needs Trusts
Please join us for an informational hour with Founder and President of Oak Wealth Advisors, Mike Walther. Parents and guardians will receive an introduction to ABLE Accounts and Special Needs Trusts. Learn about the benefits of an Achieving a Better Life Experience (ABLE) account, how to apply for this tax-advantaged savings program, and how to evaluate the various account options. There will also be a discussion of Special Needs Trusts. Both account types allow individuals with disabilities to accumulate assets without reducing their eligibility for means-tested disability benefits such as Supplemental Security Income (SSI) or Medicaid. Handouts and a takeaway checklist will be provided to help you with the next steps. This presentation is beneficial for families whose loved one has a diagnosis and who want to put the essential elements of a special needs plan in place to allow them to maximize their family’s financial resources.
Presentation 3: Wednesday April 24th
Planning for Adulthood and Continuity of Care
Please join us for an informational hour with Founder and President of Oak Wealth Advisors, Mike Walther. This presentation will focus on planning and decision-making for individuals entering adulthood. Parents and guardians will learn about Guardianship, Powers of Attorney, Supported Decision Making. Housing, employment, transportation, other planning challenges will also be discussed. We’ll review the essential need for a care guide or letter of intent that will document your loved one’s wishes, routines, health care needs, strengths, and challenges so that future care givers can be effective at retaining their quality of life. Handouts and a takeaway checklist will be provided to help you with the next steps. This presentation is beneficial for families with a loved one who is in high school or has recently entered adulthood.
CATCH presents: Become the Parent You Want to Be
Getting on the Same Page: Helping Families and Youth to "Think College"
Mar 18, 2024 at 1:00 PM via zoom
During this webinar attendees will lear about:
- The current situation regarding college options for students with intellectual disability.
- New resources from the Think Higher. Think College. campaign.
- Options that exist for students with intellectual disability, how to guide students to pursue college, and what the college experience is like for a student with intellectual disability.
Center for Enriched Living Speaker Series: Future Housing Options
TotalLink Information Sessions
Dear Adults, Families, & Supports,
Please join us to learn more about TotalLink's Social and Educational Programs, Employment Services, intake process, and more. We will have both virtual and in-person opportunities to share and discuss.
If your time allows, we invite both participants and families to attend.
Facilitators:
The Information Sessions will be facilitated by Madison McGinty (Program Director) and Greg Spigelman (Employment Manager).
Information Session Dates & Times:
Option 1 - In-Person
Friday, February 23 from 10:00 - 11:00 am
Location: TotalLink to Community Annex (1200 Shermer Rd., Northbrook)
Option 2 - Virtual (Zoom)
Date: Thursday, March 7 from 5:00 - 6:00 pm
Location: Zoom
If you have any questions, please reach out to Madison McGinty at mmcginty@totallink2.org.
Kohl Children's Museum - Everyone at Play
Everyone At Play
Sunday, Feb 25, 2024, 02:00 PM
2100 Patriot Boulevard, Glenview, Illinois, USA
Northern Suburban Special Recreation Association
Special Events!
NSSRA is gearing up for unforgettable Special Events
- Hockey Huddle: March 2, 2024 - Learn More
- FREE! Family Movie Night: March 3, 2024 - Learn More
- Karaoke & Bingo: March 9, 2024 - Learn More
- Feeling Lucky?: March 17, 2024 - Learn More
- Tee Time Adventure: March 24, 2024 - Learn More
- Painting & Popsicles: April 7, 2024 - Learn More
- BSTC: The Wizard of Oz: April 13, 2024 - Learn More
- BSTC: The Wizard of Oz: April 14, 2024 - Learn More
- Shining Stars Banquet: April 19, 2024 - Learn More
- FREE! Family Movie Night: April 21, 2024 - Learn More
- Earth Day Expedition: April 28, 2024 - Learn More
- Spring Formal: May 3, 2024 - Learn More
- Cinco de Mayo Fiesta: May 5, 2024 - Learn More
- Ventures in Volo: May 12, 2024 - Learn More
- Cruise & Cuisine: May 19, 2024 - Learn More
- Bags & Burgers: June 1, 2024 - Learn More
Ehlert Financial Group Proudly Presents Our "LEARNING TO SAVE" Series
Mark your calendars for a new series geared towards teens and young adults (ages 16-35). Please feel free forward this email to your children or grandchildren, ages 16-35, that may be interested in participating. This 3 part series will include the following classes:
- Class #2 Investment Choices - "What are the Differences?" to be held on 02/13/2024 from 7:00pm - 8:00pm.
- Class #3 Powers of Attorney - to be held on 05/14/2024 from 7:00pm - 8:00pm.
Full class description provided here.
Registration is required. Click here to register for the first class. Each webinar will be recorded and sent to the registrants.
Curt's Cafe...the place to be!
Looking for a warm and cozy place to hang out on a Monday morning, either by yourself or with friends? Come by to enjoy a hot cup of coffee and fresh scone while you support TrueNorth Transition students demonstrate their amazing job readiness skills at this job training site. We're open for business every Monday that school is in session, from 9-11 am. Curt's Cafe is located at 1766 2nd Street in Highland Park.
9 AM - 1:15 PM
This virtual webinar is the first of a series and focuses on children (birth to 13 years) with intellectual and developmental disabilities.
Click here for brochure
Research Opportunities
Do you have experience with Section 504 of the Rehabilitation Act?
What is our purpose?
We are interested in learning from students with disabilities
and/or families of students with disabilities about their
experiences with Section 504 in schools.
Who can participate?
You must either be: a student (aged 12 or older) who
applied for or currently receives Section 504 supports
from your school OR the family caregiver of a student
who applied for or currently receives Section 504
supports from school.
What will you do?
You will complete a short demographic survey. Then, you will
participate in a zoom interview for 1-1.5 hours. After the
interview, you will be asked to check your interview
summary for accuracy.
How can you enroll?
Complete the consent form here:
https://redcap.link/kfrm7u39 or contact Meghan Burke (meghan.burke@vanderbilt.edu; 615-585-1420)
Virtual Future is Now (VFIN) Research Study
Online future planning for adults with intellectual or developmental disabilities (IDD) & their families for Illinois
Are you worried about what will happen to your loved one as you get older? Do you find the process of planning for the future overwhelming?
If yes, you might be eligible to join the VFIN research study, which is testing the effectiveness of an online future planning training at the University of Illinois Chicago for adults with IDD & their families in Illinois.
The VFIN research study will randomly assign families to be part of the intervention or control group. All family caregivers and adults with IDD will complete pre- and post- tests.
Families assigned to the intervention group will receive a 6-week training with weekly 1.5 hour Zoom classes from February 20-March 26, 2024 on Tuesdays and two Wednesdays from 7-8:30 pm CT.
Families assigned to the control group will receive access to the self-paced materials after the post-test is completed.
Learn more by visiting our website: go.uic.edu/VFINIllinois
To participate, please fill out the form: go.uic.edu/IL3 or contact Katie at: 312-996-1002 or kkeiling@uic.edu
IATF Seeking Parents/Guardians’ Feedback
on Understanding of the High School (Secondary) Transition Process
The Illinois Autism Task Force (IATF) Transition sub-committee is seeking parents/guardians’ feedback on their understanding of the high school (Secondary) transition process. The survey is designed for parents/guardians of children with autism (all ages-young adults) who have an IEP.
The Autism Transition Subcommittee is conducting this survey to assess parent/family knowledge when it comes to understanding services available for the autism population leading up to and during their high school transition years. By gaining understanding of this, the IATF as well as autism-based service entities and schools can target their messaging and parent education to better guide parents, students, and families with the goal of improving student success after high school.
The survey will be available beginning September 1, 2023, ending April 30, 2024:
https://www.dhs.state.il.us/page.aspx?module=17&item=144748&surveyid=1639
If you are a parent/guardian of a child with Autism, please follow the above link and complete the survey. The survey should take 15 minutes and your responses are completely anonymous. We genuinely appreciate your participation and hope our results will help us in our work to prepare families and improve services in Illinois as students transition from school to adulthood.
Admitted to the Hospital? Call on Aaron's Coffee Corner for a Free Cup of Coffee
APS board member, Carolyn Koppel is founder of this important non profit organization that provides 24/7 access to free, fresh, quality coffee to the family, friends and caregivers of critically ill children admitted to the pediatric and neonatal intensive care units at Lurie Children’s Hospital. For more information Click Here!
RESOURCES
Mental Health Resources
Rush Inclusive Resource Directory
Although the Autism Resource Directory is targeted to families with a family member with Autism many of the resources listed are for individuals with varying disabilities.
For example, dentists or doctors available to families.
Start Your Recovery - Illinois Drug & Alcohol Rehab Centers & Support Services
Keeping Families Covered
GET HELP WITH DIAPERS AND PERIOD SUPPLIES ON THE GO
Several times each month, our mobile pantry visits 6 locations to distribute free diapers (babies, toddlers and adults) and period supplies to families who are struggling to afford them. ONLINE REGISTRATION IS REQUIRED 24 HOURS PRIOR TO YOUR FIRST VISIT TO A DISTRIBUTION DAY and must be completed using the form below.
Identification for the parent/guardian and child(ren) is required.
Diapers are provided for children up to age 3. Pull-ups are provided for children up to age 4.
Incontinence products are provided for seniors and disabled adults (65 years old and up). Individuals from 4 - 64 years old can receive products with a doctor's note/diagnosis.
KEEPING FAMILIES COVERED MOBILE DIAPER PANTRY 2024 DISTRIBUTION SCHEDULE
WAUKEGAN (10am - 12pm)
Lake County Health Department
2400 Belvidere Rd. Waukegan, IL 60085
January 17, February 21, March 20, April 17, May 15, June 19, July 24, August 21, September 18, October 16, November 20, December 18
HIGHWOOD (3:30pm - 5:00pm)
Fort Sheridan Metra Station
461 W. Old Elm, Highwood, IL 60040
February 2 & 16, ADDITIONAL DATES TO BE ADDED
Podcasts
Winnetka Voices
Winnetka Voices is a podcast hosted by The Winnetka Public Schools, featuring candid conversations on issues relevant to education and shared resources to support our students and families.
Ongoing Support Groups
SPOKEN: Supporting Parents of Kids with Extra Needs
Haven Youth and Family Services is offering a virtual group for parents of school-age kids beginning January 9th.
Questions?
Email: ali@havenforyouth.org
Click the Flier to find other parent support events in the North Shore!
Children In Therapy and You - Dad's Hang Out
This month's hang-out will be at 7:00pm at Spears in Wheeling.
Email: hello@cityofsupport.org with any questions or to sign up for email alerts. No RSVP required.
New! CATCH Conversations
Are your child's mental health struggles impacting you and your family? Are you wondering how to start finding help?
We recommend seeking support for yourself first with a CATCH Conversation.
Sign up and a CATCH volunteer will reach out to schedule a time to talk, meet for a cup of coffee, or go for a walk to give you a chance to share what's going on and learn how CATCH can support you.
Join us for information, resources, tips and strategies on a variety of topics to empower you in your parenting or caregiving journey with your child with autism. Come to connect and interact with others navigating a similar journey! Parents of newly diagnosed children are strongly encouraged to attend.
Sound Experience: a social experience for families of children with hearing loss
Lurie Children's Sound Experience is a social experience for families of children with hearing loss. We offer Sound Experience four Saturday afternoons throughout the school year at our Outpatient Center in Westchester.
The program aims to provide:
- A network of parents of children with hearing loss who are going through or have gone through similar situations and to share experiences and information
- Information for families about hearing loss and how it affects our children
- An opportunity for children with hearing loss to meet other children with hearing loss
What to Expect at Sound Experience
- Parents informally share information and stories before the formal breakout sessions
- Children and siblings of all ages are entertained with a dedicated staff of volunteers
- Parents meet in an adjoining room to discuss the meeting’s topic
How to Get Involved
To learn more about Sound Experience, ask your audiologist or contact Cara Donahue at 312.227.3061 or cdonahue@luriechildrens.org.
ParentConnect: a family support group offered in partnership with The Chicago Lighthouse’s Virtual Parent Support Group
APH FamilyConnect and The Chicago Lighthouse are pleased to offer this virtual support group for parents and families of children who are blind or visually impaired. These monthly sessions are for families to connect with and learn from each other about the joys, challenges, and adventures of raising children with visual impairments and blindness. These sessions are open to families. You only need to register once for this ongoing series. The No ACVREP or professional development credits will not be available.
About the Association of Parents and Staff
The Association of Parents and Staff (APS) is an organization of parents who have children in any of TrueNorth's 18 member school districts, and the staff who serve them. Our mission is to make a difference in the lives of our children with disabilities through advocacy, partnership and support. Together with our staff partners, we hope to heighten awareness and understanding of learning differences, provide ongoing training and education, and offer support and connections to all.
Whether children are enrolled in a TrueNorth instructional classroom or receive services through their local school district, all parents of children with learning differences are welcome.
If you would like to connect with your district representative or have questions for our Parent Engagement Facilitator, Nicole Magesis, please email us at apsnewsletter@truenorth804.org
TrueNorth Educational Cooperative 804 neither endorses nor sponsors any external organization or activity represented in this material. The distribution or display of this material is provided as a community service.
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