3.1.2 Sickle Cell Anemia Diaries
Introduction
When Anna Garcia was 14 months old, she was admitted to the hospital with a variety of serious symptoms. Anna’s parents were very scared and were not sure what was happening with their daughter. Ultimately, this hospital trip led to her diagnosis of sickle cell anemia. Sickle cell anemia is an inherited disorder affecting millions of people around the world. Almost all patients with the disease experience painful episodes, known as crises, like the first one Anna had as a baby.
Living with sickle cell anemia can often be difficult, especially for children. Patients dealing with the disease have to alter their lifestyle in order to avoid anything that may cause a crisis, such as certain medications, high altitudes, and strenuous exercise. They are often fatigued due to chronic anemia and have a high rate of infection. In this activity you will learn about what it is like for a person dealing with this serious disease. You will review Anna Garcia’s medical records to learn more about her diagnosis. You will read her diary entries, which will detail what life was like for her living with sickle cell anemia. You will then be assigned a fictitious patient who is undergoing a treatment for sickle cell disease. You will write diary entries for your assigned patient detailing how they are feeling and a description of the treatment they are receiving, including the risks and benefits. You will also include a narrative of all of the biomedical professions the patient encounters during their treatment journey.
Anna's Background
Anna's Diaries
As you read or listen, make a graphic organizer of your choice that includes the following categories: symptoms, benefits associated with treatment, risks associated with treatment, biomedical professionals involved, and lifestyle concerns.
OR
Anna Age 14
Answer Conclusion Questions 2 and 3
Careers that Help Sickle-Cell Patients
https://drive.google.com/open?id=0BxLZvP3ZvL3OUlkyeExxc2hrZ1k
Don't forget to upload it to the Padlet when you are done if it is digital!
https://padlet.com/sesposito21/312careerjournals
All "paper" versions should be displayed on the Career's Board!
Finished? Move on to Create Your Own Patient Journal
Create 1 journal entry from the perspective of the patient you choose or from the perspective of the patient’s parents. You may make a Voki, written entry, blog, video entry, etc. Options for perspectives are:
· 4 year old male being treated with antibiotics and folic acid supplements
· 7 year old female being treated with chronic transfusion therapy
· 15 year old male who will have a bone marrow transplant
Include the following information in your journal entries:
- · The symptoms the patient is experiencing and how this is affecting daily life.
- · An explanation of what the treatment entails, including the risks and benefits
- · A BRIEF description of at least two of the biomedical professionals working with the patient.
UPLOAD TO BCPS ONE TURN IN BIN